{"id":1226,"date":"2025-04-22T19:37:45","date_gmt":"2025-04-22T19:37:45","guid":{"rendered":"https:\/\/hifoder.org\/?page_id=1226"},"modified":"2025-04-22T19:38:14","modified_gmt":"2025-04-22T19:38:14","slug":"kvkk","status":"publish","type":"page","link":"https:\/\/hifoder.org\/en\/kvkk\/","title":{"rendered":"KVKK"},"content":{"rendered":"
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K\u0130\u015e\u0130SEL VER\u0130LER\u0130N \u0130\u015eLENMES\u0130NE \u0130L\u0130\u015eK\u0130N AYDINLATMA METN\u0130 VE G\u0130ZL\u0130L\u0130K POL\u0130T\u0130KASI<\/p>

Ki\u015fisel verilerin i\u015flenmesinde ba\u015fta \u00f6zel hayat\u0131n gizlili\u011fi olmak \u00fczere ki\u015filerin temel hak ve \u00f6zg\u00fcrl\u00fcklerini korumak ve ki\u015fisel verileri i\u015fleyen ger\u00e7ek ve t\u00fczel ki\u015filerin y\u00fck\u00fcml\u00fcl\u00fckleri belirlemek amac\u0131yla 6698 say\u0131l\u0131 Ki\u015fisel Verilerin Korunmas\u0131 Kanunu (\u201cKVKK\u201d) kapsam\u0131nda, Hipofosfatazya Hastal\u0131\u011f\u0131 \u0130le M\u00fccadele Derne\u011fi (\u201cHifoder\u201d veya \u201cDerne\u011fimiz\u201d olarak an\u0131lacakt\u0131r) KVKK\u2019n\u0131n \u201cVeri Sorumlusunun Ayd\u0131nlatma Y\u00fck\u00fcml\u00fcl\u00fc\u011f\u00fc\u201d ba\u015fl\u0131kl\u0131 10. maddesi uyar\u0131nca sizleri bilgilendirmek isteriz.<\/p>

Hifoder, ki\u015fisel verileri ba\u015fta 6698 say\u0131l\u0131 KVKK hukuki dayana\u011f\u0131n\u0131 KVKK\u2019dan alan ikincil mevzuat olmak \u00fczere T\u00fcrkiye Cumhuriyeti\u2019nde y\u00fcr\u00fcrl\u00fckteki sair mevzuata (\u201cVeri Koruma Mevzuat\u0131\u201d) uygun olarak i\u015flemektedir.<\/p>

Yap\u0131lan video \u00e7a\u011fr\u0131s\u0131, haber, sosyal medya payla\u015f\u0131m\u0131 projesi kapsam\u0131nda video, foto\u011fraf vb. g\u00f6nderilerinizin a\u015fa\u011f\u0131daki taraf\u0131n\u0131za\/velisi bulundu\u011funuz \u00e7ocu\u011funuza ait ki\u015fisel verileriniz a\u015fa\u011f\u0131daki kapsamda i\u015flenmektedir:<\/p>

\u0130\u015flenecek Olan Ki\u015fisel Veriler:<\/p>

Kimlik Verileriniz: Ad ve soyad\u0131n\u0131z, ya\u015f\u0131n\u0131z
\u0130leti\u015fim Verileriniz: Telefon, e-posta, tebligat adresi,
Sa\u011fl\u0131k ve tedavi verileriniz: Video i\u00e7eri\u011finde belirtece\u011finiz sa\u011fl\u0131k ve tedavi s\u00fcrecinize ili\u015fkin \u00f6zel nitelikli ki\u015fisel verileriniz,
G\u00f6rsel ve \u0130\u015fitsel Veri: Hifoder ama\u00e7lar\u0131 do\u011frultusunda ifa edilen Video, foto\u011fraf vb. g\u00f6nderileriniz kapsam\u0131nda yer alan g\u00f6r\u00fcnt\u00fcn\u00fcz, ses kayd\u0131n\u0131z ve beyanlar\u0131n\u0131z,<\/p>

Ki\u015fisel olmayan bilgiler, \u015fahsen tan\u0131mlanamayaca\u011f\u0131n\u0131z bilgilerdir. Bu bilgiler her t\u00fcrl\u00fc ama\u00e7la kullan\u0131labilir ve \u00fc\u00e7\u00fcnc\u00fc ki\u015filerle de onay al\u0131nmaks\u0131z\u0131n payla\u015f\u0131labilir.<\/p>

Ki\u015fisel Verilerin \u0130\u015flenme Amac\u0131<\/p>

Hifoder’e beyan etti\u011finiz, taraf\u0131n\u0131za ya da velisi bulundu\u011funuz \u00e7ocu\u011funuza ait ki\u015fisel veriler; Derne\u011fimiz faaliyetlerinin planlanmas\u0131 ve icras\u0131, yetkili kurum ve kurulu\u015flara mevzuattan kaynakl\u0131 bilgi verilmesi, Derne\u011fimiz faaliyet alanlar\u0131 do\u011frultusunda ki hastal\u0131klar alan\u0131nda fark\u0131ndal\u0131k olu\u015fturulmas\u0131, yine bu hastal\u0131klar alan\u0131nda kamunun bilgilendirilmesi ve bilin\u00e7lenmesi, faaliyetlerin Derne\u011fimiz prosed\u00fcrleri ve ilgili mevzuata uygun olarak y\u00fcr\u00fct\u00fclmesinin sa\u011flanmas\u0131 i\u00e7in gerekli denetim faaliyetlerinin planlanmas\u0131 ve icras\u0131, kurumsal s\u00fcrd\u00fcr\u00fclebilirlik faaliyetlerinin planlanmas\u0131 ve icras\u0131, Derne\u011fimizin itibar\u0131n\u0131n korunmas\u0131na y\u00f6nelik \u00e7al\u0131\u015fmalar\u0131n ger\u00e7ekle\u015ftirilmesi, talep ve \u015fik\u00e2yet s\u00fcre\u00e7lerinin y\u00f6netimi, kurumsal y\u00f6netim ve ileti\u015fim faaliyetlerinin planlanmas\u0131 ve icras\u0131 amac\u0131yla hukuka ve d\u00fcr\u00fcstl\u00fck kurallar\u0131na ve i\u015flendikleri ama\u00e7la ba\u011flant\u0131l\u0131, s\u0131n\u0131rl\u0131 ve \u00f6l\u00e7\u00fcl\u00fc, ilgili mevzuatta \u00f6ng\u00f6r\u00fclen veya i\u015flendikleri ama\u00e7 i\u00e7in gerekli olan s\u00fcre kadar muhafaza edilme ilkelerine uygun olarak i\u015flenecektir.<\/p>

Ki\u015fisel veriler tamamen veya k\u0131smen, otomatik olan veya olmayan yollarla elde etme, kaydetme, depolanma, muhafaza etme, de\u011fi\u015ftirme, yeniden d\u00fczenleme vb. i\u015flemler arac\u0131l\u0131\u011f\u0131yla i\u015flenebilir. Toplan\u0131lan bilgiler, haberiniz ya da aksi bir talimat\u0131n\u0131z olmaks\u0131z\u0131n faaliyet d\u0131\u015f\u0131 hi\u00e7bir nedenle ticari ama\u00e7la kullan\u0131lmamakta ve de sat\u0131lmamaktad\u0131r.<\/p>

Bu kapsamda taraf\u0131m\u0131za iletti\u011finiz veriler derne\u011fe ait web sitesi ve sosyal medya hesaplar\u0131nda yay\u0131nlanmak ve yap\u0131lacak bas\u0131n toplant\u0131s\u0131nda bas\u0131n kurulu\u015flar\u0131 arac\u0131l\u0131\u011f\u0131yla yay\u0131nlanmak ve kamunun eri\u015fimine sunulmak \u00fczere i\u015flenecek ve derne\u011fe ait sosyal medya ve web sitesi platformlar\u0131nda ba\u015fka kullan\u0131c\u0131lar taraf\u0131ndan da tekrar payla\u015f\u0131lma se\u00e7ene\u011fine izin verilmek suretiyle yay\u0131nda kalacakt\u0131r.<\/p>

Ki\u015fisel Verilerin Aktar\u0131lmas\u0131<\/p>

Taraf\u0131n\u0131zdan edinilmi\u015f olan ki\u015fisel veriler yukar\u0131da an\u0131lan ama\u00e7lar\u0131n ifa edilebilmesi i\u00e7in hukuka ve d\u00fcr\u00fcstl\u00fck kurallar\u0131na ve i\u015flendikleri ama\u00e7la ba\u011flant\u0131l\u0131, s\u0131n\u0131rl\u0131 ve \u00f6l\u00e7\u00fcl\u00fc, ilgili mevzuatta \u00f6ng\u00f6r\u00fclen veya i\u015flendikleri ama\u00e7 i\u00e7in gerekli olan s\u00fcre kadar muhafaza edilme ilkelerine uygun olarak mevzuat \u00e7er\u00e7evesinde, Derne\u011fimizce hizmet\/destek\/dan\u0131\u015fmanl\u0131k al\u0131nan ya da i\u015fbirli\u011fi yap\u0131lan yurti\u00e7i\/yurtd\u0131\u015f\u0131\/uluslararas\u0131, kamu\/\u00f6zel kurum ve kurulu\u015flar, Derne\u011fimizin dan\u0131\u015fmanlar\u0131 ya da \u00e7\u00f6z\u00fcm ortaklar\u0131 di\u011fer kurum kurulu\u015flara, yetkili kurum ve kurulu\u015flara, verilerin montaj ve editleme s\u00fcre\u00e7lerinde g\u00f6rev alacak kurumlar d\u00e2hil olmak \u00fczere Derne\u011fimizin tedarik\u00e7ilerine veya alt y\u00fcklenicilerine, destek \u00e7a\u011fr\u0131s\u0131 kapsam\u0131nda iletilen verilerin yay\u0131nlanaca\u011f\u0131 bas\u0131n kurulu\u015flar\u0131na, ilgili di\u011fer mevzuat h\u00fck\u00fcmlerinin izin verdi\u011fi ki\u015fi veya kurulu\u015flara, hukuki yetkisi d\u00e2hilinde talep etti\u011fi ama\u00e7la s\u0131n\u0131rl\u0131 olarak hukuken yetkili kamu ve\/veya \u00f6zel hukuk t\u00fczel ki\u015filerine ve di\u011fer mevzuat h\u00fck\u00fcmlerinin izin verdi\u011fi ya da zorunlu tuttu\u011fu ki\u015fi veya kurulu\u015flarla, resmi mercilerin talepleri \u00fczerine resmi mercilerle payla\u015f\u0131labilecektir. Ki\u015fisel verileriniz Ki\u015fisel Verilerin Korunmas\u0131 Kanunu\u2019nun 5 ve 8. maddelerinde belirlenen esaslar do\u011frultusunda uyar\u0131nca a\u00e7\u0131k r\u0131zan\u0131z olmaks\u0131z\u0131n \u00fc\u00e7\u00fcnc\u00fc ki\u015filere aktar\u0131labilir.<\/p>

Yurt d\u0131\u015f\u0131na aktar\u0131m faaliyetleri a\u00e7\u0131k r\u0131zan\u0131z\u0131n bulunmas\u0131 durumunda ger\u00e7ekle\u015fecektir. A\u00e7\u0131k r\u0131zan\u0131z\u0131 geri almak i\u00e7in a\u015fa\u011f\u0131da belirtilen adres arac\u0131l\u0131\u011f\u0131yla bize taleplerinizi iletebilirsiniz.<\/p>

Ki\u015fisel Verilerin Toplanma Y\u00f6ntemi ve Hukuki Sebep<\/p>

Destek \u00e7a\u011fr\u0131s\u0131na kat\u0131l\u0131m\u0131n\u0131z sonucunda ki\u015fisel verileriniz yaz\u0131l\u0131, s\u00f6zl\u00fc veya elektronik ortamda toplanabilir. Dernek taraf\u0131ndan yay\u0131nlanan destek \u00e7a\u011fr\u0131s\u0131lar\u0131na i\u015ftirak ederek ki\u015fisel verilerinizi KVKK 5.maddesinde d\u00fczenlenen \u201cilgili ki\u015finin kendisi taraf\u0131ndan alenile\u015ftirilmi\u015f olmas\u0131\u201d hukuki sebebi do\u011frultusunda toplanmaktad\u0131r. Bu kapsamda ki\u015fisel verilerinizin toplanmas\u0131 ve i\u015flenmesinin hukuki dayana\u011f\u0131, destek \u00e7a\u011fr\u0131s\u0131na i\u015ftirak ederek bu bilgileri kendi iradeniz ile payla\u015fman\u0131zd\u0131r. A\u00e7\u0131k r\u0131zan\u0131z\u0131 her zaman a\u015fa\u011f\u0131da belirtilen adres arac\u0131l\u0131\u011f\u0131yla talebinizi yaz\u0131l\u0131 olarak ileterek geri alabilirsiniz.<\/p>

Ki\u015fisel Verilerin Silinmesi, Yok Edilmesi veya Anonim Hale Getirilmesi<\/p>

KVKK 7. maddesi uyar\u0131nca, ki\u015fisel verilerin ilgili mevzuata uygun olarak i\u015flenmi\u015f olmas\u0131na ra\u011fmen, i\u015flenmesini gerektiren sebeplerin ortadan kalkmas\u0131 halinde ki\u015fisel veriler re’sen veya ki\u015fisel veri sahibinin talebi \u00fczerine Derne\u011fimiz taraf\u0131ndan silinir, yok edilir veya anonim hale getirilir. Bu hususa ili\u015fkin usul ve esaslar 28.10.2017 tarihli ve 30224 say\u0131l\u0131 Resmi Gazete’de yay\u0131nlanan Ki\u015fisel Verilerin Silinmesi, Yok Edilmesi veya Anonim Hale Getirilmesi Hakk\u0131nda Y\u00f6netmelik’e g\u00f6re yerine getirilecektir. Derne\u011fimiz\u2019e ba\u015fvurarak taraf\u0131n\u0131za ya da velisi bulundu\u011funuz \u00e7ocu\u011funuza ait ki\u015fisel verilerinizin silinmesini veya yok edilmesini talep etti\u011finizde;<\/p>

a) Ki\u015fisel verileri i\u015fleme \u015fartlar\u0131n\u0131n tamam\u0131 ortadan kalkm\u0131\u015fsa; talebe konu ki\u015fisel verilerinizi silinir, yok edilir veya anonim hale getirilir. Talebiniz en ge\u00e7 30 g\u00fcn i\u00e7inde sonu\u00e7land\u0131r\u0131l\u0131r ve taraf\u0131n\u0131za bilgi verilir.
b) Ki\u015fisel verileri i\u015fleme \u015fartlar\u0131n\u0131n tamam\u0131 ortadan kalkm\u0131\u015f ve talebe konu olan ki\u015fisel veriler \u00fc\u00e7\u00fcnc\u00fc ki\u015filere aktar\u0131lm\u0131\u015fsa bu durum \u00fc\u00e7\u00fcnc\u00fc ki\u015filere bildirir; y\u00f6netmelik kapsam\u0131nda gerekli i\u015flemlerin yap\u0131lmas\u0131 temin edilir.
c) Ki\u015fisel verileri i\u015fleme \u015fartlar\u0131n\u0131n tamam\u0131 ortadan kalkmam\u0131\u015fsa, talebiniz KVKK 13. maddesinin \u00fc\u00e7\u00fcnc\u00fc f\u0131kras\u0131 uyar\u0131nca gerek\u00e7esi a\u00e7\u0131klanarak reddedilebilir ve ret cevab\u0131 taraf\u0131n\u0131za en ge\u00e7 30 g\u00fcn i\u00e7inde yaz\u0131l\u0131 olarak ya da elektronik ortamda bildirilir.<\/p>

Ki\u015fisel Verilerin Korunmas\u0131 Kanunu’ndan Do\u011fan Haklar\u0131n\u0131z<\/p>

Kanun’un 11. maddesine g\u00f6re ki\u015fisel veri sahibi olarak;<\/p>

Ki\u015fisel verilerinin i\u015flenip i\u015flenmedi\u011fini \u00f6\u011frenme,
Ki\u015fisel verileri i\u015flenmi\u015fse buna ili\u015fkin bilgi talep etme,
Ki\u015fisel verilerinin i\u015flenme amac\u0131n\u0131 ve bunlar\u0131n amac\u0131na uygun kullan\u0131p kullan\u0131lmad\u0131\u011f\u0131n\u0131 \u00f6\u011frenme,
Yurt i\u00e7inde veya yurt d\u0131\u015f\u0131nda ki\u015fisel verilerinin aktar\u0131ld\u0131\u011f\u0131 \u00fc\u00e7\u00fcnc\u00fc ki\u015fileri bilme,
Ki\u015fisel verilerinin eksik ya da yanl\u0131\u015f i\u015flenmi\u015f olmas\u0131 halinde bunlar\u0131n d\u00fczeltilmesini isteme,
Ki\u015fisel verilerinin silinmesini, anonim hale getirilmesini veya yok edilmesini isteme,
D\u00fczeltilme, silinme, anonim hale getirme veya yok edilmesi halinde bunun \u00fc\u00e7\u00fcnc\u00fc ki\u015filere bildirilmesini isteme,
\u0130\u015flenen verilerinin m\u00fcnhas\u0131ran otomatik sistemler vas\u0131tas\u0131yla analiz edilmesi suretiyle ki\u015finin kendisi aleyhine bir sonucun ortaya \u00e7\u0131kmas\u0131na itiraz etme,
Ki\u015fisel verilerinin kanuna ayk\u0131r\u0131 olarak i\u015flenmesi sebebiyle zarar u\u011framas\u0131 halinde zarar\u0131n giderilmesini talep etme haklar\u0131na sahipsiniz.<\/p>

TALEPLER\u0130N\u0130Z \u0130\u00c7\u0130N B\u0130Z\u0130MLE \u0130LET\u0130\u015e\u0130ME GE\u00c7MEK \u0130STERSEN\u0130Z<\/p>

KVKK kapsam\u0131nda bizimle ileti\u015fime ge\u00e7mek, geri bildirimde bulunmak ya da sorular\u0131n\u0131z\u0131 y\u00f6neltmek isterseniz, kimli\u011finizi te\u015fvik edici belgeler ve talebinizi i\u00e7eren dilek\u00e7eniz ile iletisim@hifoder.org veya info@hifoder.org mail adresimize e-posta g\u00f6nderebilirsiniz.
Bu kapsamda konuyla ilgili yap\u0131lacak olan yaz\u0131l\u0131 ba\u015fvurular taraf\u0131m\u0131zdan yap\u0131lacak olan kimlik do\u011frulamas\u0131n\u0131 takiben kabul edilecek olup, ilgililere yasal s\u00fcreler i\u00e7erisinde geri d\u00f6n\u00fc\u015fte bulunulacakt\u0131r.
Hipofosfatazya Hastal\u0131\u011f\u0131 \u0130le M\u00fccadele Derne\u011fi – Hifoder<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"

K\u0130\u015e\u0130SEL VER\u0130LER\u0130N \u0130\u015eLENMES\u0130NE \u0130L\u0130\u015eK\u0130N AYDINLATMA METN\u0130 VE G\u0130ZL\u0130L\u0130K POL\u0130T\u0130KASI Ki\u015fisel verilerin i\u015flenmesinde ba\u015fta \u00f6zel hayat\u0131n gizlili\u011fi olmak \u00fczere ki\u015filerin temel hak ve \u00f6zg\u00fcrl\u00fcklerini korumak ve ki\u015fisel verileri i\u015fleyen ger\u00e7ek ve t\u00fczel ki\u015filerin y\u00fck\u00fcml\u00fcl\u00fckleri belirlemek amac\u0131yla 6698 say\u0131l\u0131 Ki\u015fisel Verilerin Korunmas\u0131 Kanunu (\u201cKVKK\u201d) kapsam\u0131nda, Hipofosfatazya Hastal\u0131\u011f\u0131 \u0130le M\u00fccadele Derne\u011fi (\u201cHifoder\u201d veya \u201cDerne\u011fimiz\u201d olarak an\u0131lacakt\u0131r) KVKK\u2019n\u0131n \u201cVeri […]<\/p>","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"elementor_header_footer","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-1226","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nKVKK - 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