{"id":1369,"date":"2025-07-09T09:10:08","date_gmt":"2025-07-09T09:10:08","guid":{"rendered":"https:\/\/hifoder.org\/?page_id=1369"},"modified":"2025-07-09T09:10:50","modified_gmt":"2025-07-09T09:10:50","slug":"faaliyetlerimiz","status":"publish","type":"page","link":"http:\/\/hifoder.org\/en\/dernek-hakkinda\/faaliyetlerimiz\/","title":{"rendered":"Our Activities"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"1369\" class=\"elementor elementor-1369\" data-elementor-post-type=\"page\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-0c10a30 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"0c10a30\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element 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elementor-element-66e57c8 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"66e57c8\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;sticky&quot;:&quot;top&quot;,&quot;sticky_parent&quot;:&quot;yes&quot;,&quot;sticky_offset&quot;:120,&quot;sticky_on&quot;:[&quot;desktop&quot;,&quot;tablet&quot;,&quot;mobile&quot;],&quot;sticky_effects_offset&quot;:0,&quot;sticky_anchor_link_offset&quot;:0}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-no\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-86acf23\" data-id=\"86acf23\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-bf7c92b elementor-nav-menu__align-start elementor-nav-menu--dropdown-none elementor-widget elementor-widget-nav-menu\" data-id=\"bf7c92b\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;layout&quot;:&quot;vertical&quot;,&quot;submenu_icon&quot;:{&quot;value&quot;:&quot;&lt;svg aria-hidden=\\&quot;true\\&quot; class=\\&quot;e-font-icon-svg e-fas-caret-down\\&quot; viewBox=\\&quot;0 0 320 512\\&quot; xmlns=\\&quot;http:\\\/\\\/www.w3.org\\\/2000\\\/svg\\&quot;&gt;&lt;path d=\\&quot;M31.3 192h257.3c17.8 0 26.7 21.5 14.1 34.1L174.1 354.8c-7.8 7.8-20.5 7.8-28.3 0L17.2 226.1C4.6 213.5 13.5 192 31.3 192z\\&quot;&gt;&lt;\\\/path&gt;&lt;\\\/svg&gt;&quot;,&quot;library&quot;:&quot;fa-solid&quot;}}\" data-widget_type=\"nav-menu.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t<nav aria-label=\"Menu\" class=\"elementor-nav-menu--main elementor-nav-menu__container elementor-nav-menu--layout-vertical e--pointer-background e--animation-fade\">\n\t\t\t\t<ul id=\"menu-1-bf7c92b\" class=\"elementor-nav-menu sm-vertical\"><li class=\"menu-item menu-item-type-taxonomy menu-item-object-category menu-item-1145\"><a href=\"http:\/\/hifoder.org\/en\/kategori\/haberler\/\" class=\"elementor-item\">Haberler<\/a><\/li>\n<li class=\"menu-item menu-item-type-taxonomy menu-item-object-category menu-item-1146\"><a href=\"http:\/\/hifoder.org\/en\/kategori\/etkinlikler\/\" class=\"elementor-item\">Etkinlikler<\/a><\/li>\n<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1147\"><a href=\"http:\/\/hifoder.org\/en\/dernek-hakkinda\/dernek-tuzugumuz\/\" class=\"elementor-item\">Dernek T\u00fcz\u00fc\u011f\u00fcm\u00fcz<\/a><\/li>\n<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1307\"><a href=\"http:\/\/hifoder.org\/en\/faaliyet-raporlari\/\" class=\"elementor-item\">Faaliyet Raporlar\u0131<\/a><\/li>\n<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1374\"><a href=\"http:\/\/hifoder.org\/en\/dernek-hakkinda\/faaliyetlerimiz\/\" class=\"elementor-item\">Faaliyetlerimiz<\/a><\/li>\n<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1148\"><a href=\"http:\/\/hifoder.org\/en\/dernek-hakkinda\/biz-kimiz\/\" class=\"elementor-item\">Biz Kimiz?<\/a><\/li>\n<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1368\"><a href=\"http:\/\/hifoder.org\/en\/dernek-hakkinda\/karsilastigimiz-zorluklar\/\" class=\"elementor-item\">Kar\u015f\u0131la\u015ft\u0131\u011f\u0131m\u0131z Zorluklar<\/a><\/li>\n<li class=\"menu-item menu-item-type-taxonomy menu-item-object-category menu-item-1149\"><a href=\"http:\/\/hifoder.org\/en\/kategori\/duyurular\/\" class=\"elementor-item\">Duyurular<\/a><\/li>\n<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1199\"><a href=\"http:\/\/hifoder.org\/en\/dernek-hakkinda\/destek-ol\/\" class=\"elementor-item\">Destek Ol<\/a><\/li>\n<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1338\"><a href=\"http:\/\/hifoder.org\/en\/uyelik-formu\/\" class=\"elementor-item\">\u00dcyelik Formu<\/a><\/li>\n<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1198\"><a href=\"http:\/\/hifoder.org\/en\/dernek-hakkinda\/yonetim-kurulu\/\" class=\"elementor-item\">Y\u00f6netim Kurulu<\/a><\/li>\n<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1213\"><a href=\"http:\/\/hifoder.org\/en\/dernek-hakkinda\/tedaviye-erisim-destek-talebi\/\" class=\"elementor-item\">Tedaviye Eri\u015fim Destek Talebi<\/a><\/li>\n<\/ul>\t\t\t<\/nav>\n\t\t\t\t\t\t<nav class=\"elementor-nav-menu--dropdown elementor-nav-menu__container\" aria-hidden=\"true\">\n\t\t\t\t<ul id=\"menu-2-bf7c92b\" class=\"elementor-nav-menu sm-vertical\"><li class=\"menu-item menu-item-type-taxonomy menu-item-object-category menu-item-1145\"><a href=\"http:\/\/hifoder.org\/en\/kategori\/haberler\/\" class=\"elementor-item\" tabindex=\"-1\">Haberler<\/a><\/li>\n<li class=\"menu-item menu-item-type-taxonomy menu-item-object-category menu-item-1146\"><a href=\"http:\/\/hifoder.org\/en\/kategori\/etkinlikler\/\" class=\"elementor-item\" tabindex=\"-1\">Etkinlikler<\/a><\/li>\n<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1147\"><a href=\"http:\/\/hifoder.org\/en\/dernek-hakkinda\/dernek-tuzugumuz\/\" class=\"elementor-item\" tabindex=\"-1\">Dernek T\u00fcz\u00fc\u011f\u00fcm\u00fcz<\/a><\/li>\n<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1307\"><a href=\"http:\/\/hifoder.org\/en\/faaliyet-raporlari\/\" class=\"elementor-item\" tabindex=\"-1\">Faaliyet Raporlar\u0131<\/a><\/li>\n<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1374\"><a href=\"http:\/\/hifoder.org\/en\/dernek-hakkinda\/faaliyetlerimiz\/\" class=\"elementor-item\" tabindex=\"-1\">Faaliyetlerimiz<\/a><\/li>\n<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1148\"><a href=\"http:\/\/hifoder.org\/en\/dernek-hakkinda\/biz-kimiz\/\" class=\"elementor-item\" tabindex=\"-1\">Biz Kimiz?<\/a><\/li>\n<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1368\"><a href=\"http:\/\/hifoder.org\/en\/dernek-hakkinda\/karsilastigimiz-zorluklar\/\" class=\"elementor-item\" tabindex=\"-1\">Kar\u015f\u0131la\u015ft\u0131\u011f\u0131m\u0131z Zorluklar<\/a><\/li>\n<li class=\"menu-item menu-item-type-taxonomy menu-item-object-category menu-item-1149\"><a href=\"http:\/\/hifoder.org\/en\/kategori\/duyurular\/\" class=\"elementor-item\" tabindex=\"-1\">Duyurular<\/a><\/li>\n<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1199\"><a href=\"http:\/\/hifoder.org\/en\/dernek-hakkinda\/destek-ol\/\" class=\"elementor-item\" tabindex=\"-1\">Destek Ol<\/a><\/li>\n<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1338\"><a href=\"http:\/\/hifoder.org\/en\/uyelik-formu\/\" class=\"elementor-item\" tabindex=\"-1\">\u00dcyelik Formu<\/a><\/li>\n<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1198\"><a href=\"http:\/\/hifoder.org\/en\/dernek-hakkinda\/yonetim-kurulu\/\" class=\"elementor-item\" tabindex=\"-1\">Y\u00f6netim Kurulu<\/a><\/li>\n<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1213\"><a href=\"http:\/\/hifoder.org\/en\/dernek-hakkinda\/tedaviye-erisim-destek-talebi\/\" class=\"elementor-item\" tabindex=\"-1\">Tedaviye Eri\u015fim Destek Talebi<\/a><\/li>\n<\/ul>\t\t\t<\/nav>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-24d63e3\" data-id=\"24d63e3\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-eb781ee elementor-widget elementor-widget-text-editor\" data-id=\"eb781ee\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>Nadir Hastal\u0131klar A\u011f\u0131<\/strong><\/p><p>2020 y\u0131l\u0131nda Ac\u0131badem Hastanesi\u2019nde d\u00fczenlenen Nadir Hastal\u0131klar A\u011f\u0131 Tan\u0131\u015fma Toplant\u0131s\u0131\u2019na kat\u0131larak, T\u00fcrkiye\u2019deki di\u011fer nadir hastal\u0131k dernekleriyle i\u015f birli\u011fi ba\u015flatt\u0131k. Y\u00f6netim kurulumuz, a\u011f toplant\u0131lar\u0131nda aktif rol alarak fark\u0131ndal\u0131k \u00e7al\u0131\u015fmalar\u0131na katk\u0131da bulundu.<\/p><p><strong>Hukuki Destek<\/strong><\/p><p>Ailelerin SGK taraf\u0131ndan kar\u015f\u0131lanmayan ila\u00e7lara eri\u015fimi i\u00e7in \u0130\u015f Mahkemeleri\u2019nde a\u00e7t\u0131klar\u0131 davalarda hukuki destek sa\u011fl\u0131yoruz. Tedavi hakk\u0131n\u0131n Anayasal bir hak oldu\u011funu vurgulayarak, ila\u00e7lar\u0131n geri \u00f6deme kapsam\u0131na al\u0131nmas\u0131 i\u00e7in m\u00fccadele ediyoruz.<\/p><p><strong>T\u00fcrk\u00e7e Veri Taban\u0131<\/strong><\/p><p>HPP ve XLH hakk\u0131nda uluslararas\u0131 yay\u0131nlar\u0131 ve klinik raporlar\u0131 T\u00fcrk\u00e7e\u2019ye \u00e7evirerek, T\u00fcrkiye\u2019de bir veritaban\u0131 olu\u015fturmay\u0131 hedefliyoruz. Bu proje, sa\u011fl\u0131k \u00e7al\u0131\u015fanlar\u0131n\u0131n ve ara\u015ft\u0131rmac\u0131lar\u0131n eri\u015fimini kolayla\u015ft\u0131racak.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Nadir Hastal\u0131klar A\u011f\u0131 2020 y\u0131l\u0131nda Ac\u0131badem Hastanesi\u2019nde d\u00fczenlenen Nadir Hastal\u0131klar A\u011f\u0131 Tan\u0131\u015fma Toplant\u0131s\u0131\u2019na kat\u0131larak, T\u00fcrkiye\u2019deki di\u011fer nadir hastal\u0131k dernekleriyle i\u015f birli\u011fi ba\u015flatt\u0131k. Y\u00f6netim kurulumuz, a\u011f toplant\u0131lar\u0131nda aktif rol alarak fark\u0131ndal\u0131k \u00e7al\u0131\u015fmalar\u0131na katk\u0131da bulundu. Hukuki Destek Ailelerin SGK taraf\u0131ndan kar\u015f\u0131lanmayan ila\u00e7lara eri\u015fimi i\u00e7in \u0130\u015f Mahkemeleri\u2019nde a\u00e7t\u0131klar\u0131 davalarda hukuki destek sa\u011fl\u0131yoruz. Tedavi hakk\u0131n\u0131n Anayasal bir hak oldu\u011funu [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":56,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"elementor_header_footer","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-1369","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Faaliyetlerimiz - Hifo-DER<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/hifoder.org\/en\/dernek-hakkinda\/faaliyetlerimiz\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Faaliyetlerimiz - Hifo-DER\" \/>\n<meta property=\"og:description\" content=\"Nadir Hastal\u0131klar A\u011f\u0131 2020 y\u0131l\u0131nda Ac\u0131badem Hastanesi\u2019nde d\u00fczenlenen Nadir Hastal\u0131klar A\u011f\u0131 Tan\u0131\u015fma Toplant\u0131s\u0131\u2019na kat\u0131larak, T\u00fcrkiye\u2019deki di\u011fer nadir hastal\u0131k dernekleriyle i\u015f birli\u011fi ba\u015flatt\u0131k. Y\u00f6netim kurulumuz, a\u011f toplant\u0131lar\u0131nda aktif rol alarak fark\u0131ndal\u0131k \u00e7al\u0131\u015fmalar\u0131na katk\u0131da bulundu. Hukuki Destek Ailelerin SGK taraf\u0131ndan kar\u015f\u0131lanmayan ila\u00e7lara eri\u015fimi i\u00e7in \u0130\u015f Mahkemeleri\u2019nde a\u00e7t\u0131klar\u0131 davalarda hukuki destek sa\u011fl\u0131yoruz. 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